BEGIN:VCALENDAR VERSION:2.0 PRODID:-//wp-events-plugin.com//7.2.1//EN TZID:America/Toronto X-WR-TIMEZONE:America/Toronto BEGIN:VEVENT UID:4695@stittsvillecentral.ca DTSTART;TZID=America/Toronto:20200511T183000 DTEND;TZID=America/Toronto:20200926T233000 DTSTAMP:20200511T193114Z URL:https://stittsvillecentral.ca/events/rock-out-4-jack-party-silent-auct ion-guitar-raffle-finale/ SUMMARY:Rock Out 4 Jack Party & Silent Auction/Guitar Raffle Finale DESCRIPTION:Dear Stittsville Central family\,\n\nI hope this message finds you well.\n\nWe are planning\, organizing\, and hosting a “Rock Out 4 Ja ck” fundraising event for our son and brother\, Jack. And we would love to share our storied journey with you.\n\nJack was born with several seve re disabilities and life-limiting conditions. He requires around-the-clock  nursing care. His mom hasn't been able to work since Jack was born\, as she is Jack's primary nurse. And his dad is battling guarded\, high-risk c ancer. The family is without private insurance\; the costs of little Jack ’s life sustaining medical supplies alone (tracheostomy &\; enteral f eeding) are astronomical.\n\nJack is a young Stittsville boy who was born with CHARGE Syndrome\; a rare and life-limiting disorder that arises durin g early fetal development &\; affects multiple organ systems. Jack is T racheostomy dependent\, has a feeding tube insertion and is deaf-with visi on impairment. He has had 20 surgeries to date (#21 coming soon). Jack has had numerous admissions to CHEO totaling over 2 years\, and he also requi res 24-hour nursing care. Jack was subsequently diagnosed with severe aut ism and continues to battle epilepsy…at one point over 100 visible seizu res daily were common.\n\nOur fundraising endeavour\, ROCK OUT 4 JACK Part y &\; Silent Auction/Guitar Raffle Finale\, will take place on Saturday September 26th\, 2020\, at Yuk Yuk’s Comedy Club on Elgin Street here i n Ottawa.\n\nhttps://www.facebook.com/events/550961889082499/\n\nJack’s Silent Auction is hosted by his “Rock Out 4 Jack” page.\n\nAll donors will be gratefully acknowledged on this public event\, and a link to soci al channels and website and website will also be incorporated.\n\nhttps:// www.facebook.com/rockoutforjack/\n\n(We would be honoured if you were to f ollow Jack’s journey with us\, by liking his page.)\n\nWe would be ever so thankful if you were able to kindly support our family\, with a\n\ngift -in-kind donation for our silent auctions.\n\nYou are our hope\, by rallyi ng around Jack and his quality of life. We are grateful to every thoughtfu l donor that chooses to contribute to his baby steps and mini miracles. We would be very appreciative if you are able to kindly share Jack’s journ ey with your family\, friends\, colleagues\, and clients\, alongside socia l media channels such as Facebook\, Instagram\, WhatsApp\, and Twitter.\n\ nYou can learn more about Jack’s journey on our newly launched website:\ n\nwww.rockout4jack.org\n\nWe also have a GoFundMe link available:\n\nwww. gofundme.com/jackbrown\n\nI have attached Jack’s fundraising letter and event flyer for your perusal.\n\nI have also attached a wonderful letter r egarding Ambrotek\; Canada’s #1 Print Broker. If you are in the market f or printing services\, please consider Ambrotek\, as it has committed to d onating the profits generated from all new referrals directly to Jack’s medical needs. Kindly mention that Jack sent you. We would be eternally gr ateful.\n\nWe would love to have you join us for an evening of memories an d laughter during our fundraising event at Yuk Yuk’s on Saturday Septemb er 26th.\n\nPlease click the link below and purchase tickets ($20/each) fo r the 7pm show and/or the 945pm show. We hope to see you there.\n\nhttps:/ /www.yukyuks.com/?action=club.specialshows&\;venueID=517\n\nYou could a lso kindly support Jack by purchasing tickets for our fabulous guitar raff le\; four high-end electric guitars are available to be won. Please check out our poster attached.\n\nIf you have any questions\, comments\, or conc erns please reach out to me at your convenience. I will be more than happy to answer.\n\nWith love – Greg Brown\, Susan\, Elizabeth &\; Jack\n\ n419 Montserrat Street\n\nStittsville ON\n\nK2S 0L6\n\n613-808-2169\n\ngre gorybrown@live.ca\n\ngreg@RockOut4Jack.org\n\n \;\n\nThe following fun draising letter was written by Jack’s sister\, Elizabeth:\n\nRock Out Fo r Jack Fundraiser &\; Silent Auction\n\nDear Friends\,\n\nI am writin g to you on behalf of my 10-year-old brother and my Dad. I would love to s hare our storied journey with you.\n\nJack was born in June of 2009 with m any severe disabilities and life-limiting conditions. He is medically frag ile and requires 24-hour nursing care. Jack was born with an uncommon synd rome named CHARGE. This syndrome is the leading cause of blind-deafness in children.  Jack is deaf\, with some vision impairment. He has a tracheos tomy and a feeding tube. And he is mostly confined to a wheelchair (althou gh he took his first unassisted steps recently at school (we never knew if Jack would ever be able to walk). Jack was also recently diagnosed with s evere autism\; less than the first percentile. We have never heard Jack’ s voice. I cannot wait for the day I hear his first words. We’ve never b een able to snuggle with Jack at night. He is hooked up to 4 machines peri odically throughout the night. Jack’s mom has not been employable since Jack’s birth as she is not only his mom\, but his nurse who has been tra ined by the staff at CHEO to care for Jack and to use life-saving measures if necessary.\n\nJack was admitted to CHEO on March 28th for his 20th su rgery. He has unfortunately spent over 2 years at CHEO altogether. CHEO ha s been like a 2nd home for our family.\n\nExactly 3 months after Jack was born my dad was diagnosed with guarded\, high risk Melanoma\, with a 6-mo nth prognosis. Jack was during a 3-month hospital stay when Dad was diagno sed. Since both his mom and dad were trained to care for Jack\, they split 24 hour rotating shifts at his bedside. That was the toughest\, most emot ional few months that we have ever endured. My dad tried not to break down as he held Jack\, but knowing he would grow up without a father was too m uch to grasp. The CHEO team saw our emotional struggles and set us up with a social worker at the hospital. We’ve been met with love and compassio n throughout our entire experience with CHEO.\n\nMy dad remained in hospit al for 3 weeks after his first surgery. The good thing was that the 2 hosp itals were connected by a tunnel. Jack’s mom spent her days running back and forth between the two hospitals.\n\nRecently my dad was hit with a ma jor depression disorder (Doctors expected it to happen much sooner). Walki ng on eggshells with his health and his son’s fragilities\, the recent p assing of his father\, added pressure at work\, and a marital breakdown wi th Jack’s mom resulted in a significant decline in his mental health. On a positive note\, the duration Dad has remained at home helped him develo p a bond with Jack that is much stronger than we could ever pray for. He h as truly enjoyed being a stay-at-home dad for this exact reason. Unfortuna tely\, Dad has had to resign from work as a result of the physical and emo tional scars left behind by cancer\, which left him broken\, beat\, and sc arred. Unfortunately\, he will never be in remission\, but he made a promi se to us that he will continue to fight!\n\nBecause of dad’s illness\, a nd mom being Jack’s full-time nurse\, they are without private insurance . Although there is some support from government affiliated agencies\, the out-of-pocket expenses for Jack’s care are astronomical. Life sustainin g supplies and equipment (tracheostomy &\; enteral feeding supplies) ar e roughly $34\,000/year and incontinence supplies are $5\,400\, which is a portion of the cost of raising a medically fragile child. Although Jack s till faces a morbidity/mortality rate he continues to enjoy life with enth usiasm.\n\nTo our friends\, we are graciously hoping for your support for\ n\nthis upcoming benefit fundraiser for Jack\,\n\nand we are gratefully ac cepting gifts in-kind to benefit Jack’s silent auction.\n\nIf you have a ny questions\, comments or concerns please feel free to contact me at your convenience.\n\nThank you for reading.\n\nElizabeth Brown and family (Gre g\, Susan\, and Jack)\n\n419 Montserrat Street\n\nStittsville ON K2S0L6\n\ n613-808-2169\n\nElizabeth.brown1@hotmail.com\n\ngregorybrown@live.ca\n\nG reg@RockOut4Jack.org\n\nYou can find us on Facebook: “Rock Out For Jack ”\n\nhttps://www.facebook.com/rockoutforjack/\n\nYou can find Jack’s s ilent auction event “Rock Out 4 Jack Party &\; Silent Auction/Guitar Raffle Finale” on Facebook:\n\nhttps://www.facebook.com/events/407887659 871400/\n\nJack’s newly launched website:\n\nwww.rockout4jack.org\n\nGoF undMe link for Jack:\n\nwww.gofundme.com/jackbrown CATEGORIES:Health LOCATION:Yuk Yuk's Comedy Club\, 292 Elgin Street\, Ottawa\, ON\, K2P 1M3\, Canada X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=292 Elgin Street\, Ottawa\, ON\, K2P 1M3\, Canada;X-APPLE-RADIUS=100;X-TITLE=Yuk Yuk's Comedy Club:ge o:0,0 END:VEVENT BEGIN:VTIMEZONE TZID:America/Toronto X-LIC-LOCATION:America/Toronto BEGIN:DAYLIGHT DTSTART:20200308T030000 TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT END:DAYLIGHT END:VTIMEZONE END:VCALENDAR